12-year old Parth has a rare and deadly brain disorder. Due to financial constraints, his father had almost given up hope to get his son treated. He had spent all his savings, sold off his property and his wife’s jewellery on Parth’s treatment and was left with nothing more to continue the treatment. With no option left, Parth’s father thought to write a letter to the Prime Minister seeking help for Parth’s treatment. To his complete surprise, he got a very quick positive reply from the Prime Minister Office.
Parth is from Gujarat’s Amreli district and suffers from the rare Subacute Sclerosing Panencephalitis (SSPE), a deadly brain disorder related to measles (rubeola) infection. The disease is debilitating and progressive. “He (Parth) was diagnosed with the disease (SSPE) some four months back. I consulted all the specialists in Amreli as well as in Ahmedabad but there was no improvement in his condition,” Parth’s father told DD News.
“I sold all my property, including my wife’s jewellery, to help my only son. As a final resort, I wrote a letter to PM Modi and to the health ministry seeking help in the treatment for Parth,” he said. A few days later, the family received a letter from the Prime Minister’s office assuring free and full treatment for the boy in All India Institute of Medical Sciences (AIIMS).
“Parth is now undergoing treatment at AIIMS after PM assured us full support and financial assistance for my son’s treatment. So now, not only do we have financial aid, the PM has also given us moral support.”
While the financial aspect of the treatment has been taken care of, it is still an uphill battle for Parth, said specialists at AIIMS, to DD News. They said his condition is very critical. “This is a degenerative brain disease. We are providing every possible treatment to the patient. Currently, all the required tests are being done,” said Dr Sheffali Gulati of the child neurology department at AIIMS. Parth’s father though is pleased that everything possible is now being done, thanks to the PM.
This is not the first time that PM Modi has stepped in to provide help in such cases. Earlier, Prime Minister Modi helped Vaishali Yadav, a six-year old girl from Pune, who had a hole in her heart. Vaishali was too poor to afford surgery and wrote a letter to the Prime Minister. She got a prompt reply from the PMO and a free surgery was conducted. Before that, an eight-year-old girl Taiyyaba from Agra had also written to Narendra Modi seeking financial aid to treat her congenital heart disease. Replying promptly to Taiyyaba’s request, the Prime Minister’s Office immediately arranged for her treatment at New Delhi’s GB Pant Hospital. The expenses of her treatment were borne by the government.